About the Author
Barbara Prainsack is Reader in Sociology in the Department of Social Science, Health and Medicine at King's College London, UK.
Silke Schicktanz is Professor of Culture and Ethics of Biomedicine at the University Medical Centre Göttingen, Germany.
Gabriele Werner-Felmayer is University Professor of Medical Biochemistry at the Medical University of Innsbruck, Austria.
Table of Contents
Contents: Foreword, Johannes Zschocke; Geneticising life: a collective endeavour and its challenges, Barbara Prainsack, Silke Schicktanz and Gabriele Werner-Felmayer. Part I Creating Identities: Will personal genomic information transform one’s self? Jennifer R. Fishman and Michelle L. McGowan; The changing self: philosophical concepts of self and personal identity in a post-clinical age of genetics, Josef Quitterer; Ancestry testing and DNA: uses, limits - and caveat emptor, Troy Duster; Other stories: artistic explorations of genealogy and identity, Priska Gisler, Mo Diener and Luzia Hürzeler. Part II Sharing Knowledge: The latent figure protocol - a photo essay, Paul Vanouse; Consequences of sequences, codes and messages: artistic and scientific readings of chromosomes in an era of consumerism, Gabriele Werner-Felmayer; The ethics of patenting in genetics: a second enclosure of the commons?, Sigrid Sterckx and Julian Cockbain. Part III Participating in the Social Laboratory: Understanding participation: the ‘citizen science’ of genetics, Barbara Prainsack; LabouringMe, LabouringUs, Gisli Palsson; Making responsible life plans: cultural differences in lay attitudes toward predictive genetic testing for late-onset diseases, Aviad E. Raz, Nitzan Rimon-Zarfaty, Julia Inthorn and Silke Schicktanz; Genetic responsibility revisited: moral and cultural implications of genetic prediction of Alzheimer’s disease, Silke Schicktanz and Friederike Kogel. Index.